Posted by Bennie Sue (63.11.65.231) on February 26, 2001 at 06:45:12:
In Reply to: You think You have a complaint about treatment here? posted by Donna on February 26, 2001 at 00:24:06:
but I want everyone to know that I respect your wishes.
We have more committee chairmen and members than have yet been listed on the OUCH site. The work will go on as you hope. We are just now getting our momentum up. With new members and more volunteers there will be a second CHAW - your legacy will continue.
Please check the site once in a while to see what is being accomplished based on the start you gave us.
Everybody needs to know: Donna and her special talents and service cannot be replaced. But she should have the satisfaction of knowing she contributed greatly to the spread of knowledge of CH through her efforts last summer.
I hope more and more people will put forth their best efforts to gain more recognition for us clusterheads at the doctor's office, emergency room, pharmacy, or in alerting insurance companies to our extreme needs.
We must brainstorm in chats and on the MB. Many people have good ideas, and more will arise out of concerned discussion. People here are smart and knowledgable in many areas of endeavor. No suggestion should be disregarded without discussion of its pros and cons by those of us who know more about CH and its effect on our lives than anyone else in the world.
Anyone who wants to offer just one hour a week to OUCH can add tremendously to our growth as a united organization whose purpose is to serve US.
Thank you, Donna, and everyone who believes we can accomplish great things.