Posted by Margi (188.8.131.52) on March 05, 2001 at 11:56:53:
In Reply to: Italian meeting report... posted by Riccardo on March 05, 2001 at 02:13:26:
Princess Margaret has CH? This could be HUGE for us, guys!! Makes me wonder if she realizes that there are organizations in place to bring public awareness to her condition or she thinks she's alone like the rest of us all have at one point.
Simon, if you're reading this - is there any way to contact the neuro or a rep for the Royal Family to see if we can help her or if she can help us? Wow, this could really bring some much needed attention to CH. I realize how private the Royal Family is, but we can hope, can't we? From her point of view, it must be horrible leading a public life like that while living in fear of this horrible affliction. I guess her "peeps" can fend off the press though, right? At the risk of sounding cruel (and I'll probably go to hell for this) but what would happen if just one time, they let the world SEE what a cluster headache really looks like? I hate to wish that on anyone, especially a Princess, but...
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