Rebecca - my disabled daughter

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Posted by Mike ( on March 06, 2001 at 15:39:09:

I am looking for some advice - like most other people!
Rebecca is 31 and is profoundly physically and mentally disabled and cannot speak for herself. About 4 years ago she suddenly developed what seemed to be excrutiatingly painful headaches. Her eye would swell and exude tears and her nose would run like a tap! The pain lasted for some minutes and she has continued to have these headaches but we cannot see any pattern to them. We saw on the internet that oxygen can help and we give her 4/5 minutes of pure oxgen delivered at 8 litres per minute. This does seem to bring some relief. Rebecca has severe epilepsy (she takes anti-epileptic drugs) and we think the doctors blame the epilepsy rather than check our cluster headache theory.
If anybody has any thoughts please email soon as we visit the neurologist at end of March.
Many thanks

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