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Help us fight Cluster Headaches! Visit the O.U.C.H. Website!

Posted by Lee Darrow ( on March 07, 2001 at 17:49:39:

In Reply to: Welcome... posted by Bennie Sue on March 07, 2001 at 15:43:08:

I just discovered the board and the site and am flabbergasted that such a site exists (and my flabbers are not THAT easily gasted, I'll have you know!)!!

What a delight to find a site where there are other people who have the same, or similar, headaches that I do.

For years, I had been misdiagnosed as having migranes until, just last year, I took part in a headache evaluation program at the Illinois Institute of Technology and got the news - you are a sinus-cluster headache sufferer!

Now that I know what they are, and now that I have found this site, I don't feel quite so alone when I have an attack.

Fortunately, after years of "just living with it" I have a doc who understands the condition and is helping me choose an effective treatment plan. With luck, the group here will be a great source of information as well.

Let's face it, I'm trained as a hypnotherapist and it's embarrassing to have to say to one's colleagues, "Sorry, I've got a headache," and get chided for not being able to alleviate the symptoms through self hypnosis. Self hypnosis is only marginally effective in dealing with an attack.

Hiccups, sure! A regular headache - no problem. A CH, dear goddess, pass the meds, the ice, a hot bath and an industrial-strength belt-sander modified as a full-back vibrator to help break up the muscle lock in the neck and on the side of my skull!

I'm looking forward to visiting this group often.

Thank you all for being here.

Now, what's this about a convention?

Lee Darrow

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