Posted by Paul (128.230.9.134) on March 09, 2001 at 16:34:27:
In Reply to: I guess its just another wake up call posted by karen on March 09, 2001 at 15:44:53:
Many, if not most of us have walked down the same frustrating path in dealing with CH. It took me 12 Dr.'s and 8 years to find a Dr. that I liked and even then he had no knowledge of CH. I have a lot of respect for him because he didn't bullshit me. He said he knew nothing about CH but he referred me to an excellent neuro who did. (he also took the time to learn about CH) It is really sad that we have to educate the medical community about CH but that is where we stand now. This is one of the purposes of O.U.C.H.
You made a difference. Your Dr. is now aware there is CH. If he is smart he will educate himself about it.
Wishing you the best, hang in there!