I am a Cluster suffered...

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Posted by Carmen ( on March 10, 2001 at 14:23:03:

.... form 11 years ago, I'm now 36. What can I told you about aour pain... you all know about it, perhaps much more than me... but it is really nice for me to know people with my own pain, I've never meet before any one that suffer CH, and it is possible on e of the most difficult thing of my (our) pain: no body understand me. Only my husbund (he suffers each attack with me) can undertand a little. For may friends seems to be a "whim" to suffer CH. Some times they made me feel so bad that I wish my pain for them, I know it is terrible, but it seems to be the only way to understand. I'm not mad, I know, but they thing I am.
I have try a lot of medicines, and usualy are effective for sort periods. The best for me is oxigen 100%, it is like a miracle, in 2 minutes disappear the attack. No preventive treatment longs so much time.
I will leave more messages in this board, telling about my experience, but my english is very pooor and I waste a lot of energy to writte it correctly (I hope I'm not doing it so bad). Sorry for my mistakes
I'm really happy to know you are there, and qe are all together.
I think I will need you soon, I have the begining shadows every day.
All the best for all us
Carmen (from Spain)

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