Just so we know someone is doing something...(long)

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Help us fight Cluster Headaches! Visit the O.U.C.H. Website!

Posted by Bennie Sue ( on March 16, 2001 at 16:53:02:

besides OUCH. I am trying very hard to get us linked to the WHA. Perhaps they will link to the questionnaire - time will tell. See below.

Anyone who would like to talk with "Wayne" in Canada please let me know and give me a number for him to call. Ms. South asked if OUCH could help a sufferer who did not have Internet access. He has my number already. Any suggestions about what I might suggest as a means of contact between us?


Report of activity at WHA (World Headache Alliance):
This site is funded by an unrestricted educational grant by Pfizer Pharmaceuticals. Pfizer Pharmaceuticals is not responsible for, and does not have any editorial control over, the content of this site - including links to other web sites

A Joint Effort Between WHA, the IHS and the World Health Organization
The World Headache Alliance (WHA) has always strived to raise awareness of headache across the globe. Now, together with the International Headache Society, we are working closely with the World Health Organization (WHO) with the hopes of developing a global campaign that will help to alleviate the burden of headache around the world.

On September 7th at Headache World 2000, the World Health Organization (WHO) made an urgent call to action to over 2500 headache experts and sufferers from around the world. For the first time, WHO is considering the impact of headache on the quality of people’s lives and on healthcare systems worldwide. WHO also released its first headache publication - “Headache Disorders and Public Health – Education and Management Implications” - during Headache World 2000. This publication resulted from a meeting held in March of this year involving key members of WHA Council Members as well as medical and research experts from around the world.

By November of this year, WHO hopes to collect information on headache from across the globe in order to establish the exact burden of headache. This will allow them to plan appropriate solutions. The collection of global data on headache must start now so that the information can be analyzed and included in the 2001 World Health Report.

WHO hopes to develop global and regional education programmes that will increase public awareness of headache disorders. Raising the priority of effective treatment and prevention of headache is another goal of WHO. Further headache research in the future will also be required.

According to Dr. Timothy Steiner of Imperial College School of Medicine, London and the Chairman of Headache World 2000, “Working with an international organization such as WHO will ensure we reach out to all layers of the audiences touched by headache – policy makers, neurologists and people affected by headache.”

Dr. Richard Lipton, a neurologist and epidemiologist from Albert Einstein Institute of Medicine in New York feels that WHO’s interest in headache “will help to put headache disorders on the map worldwide” and “will help us reach out to the audiences that can make changes happen – governments.”

Valerie South, Chief Operating Officer of the WHA states that “We all have a role to play in this important initiative.” She concludes that “By working closely with WHO and the International Headache Society we hope to be able to develop a global awareness campaign which will help relieve the burden of headache for sufferers worldwide.”

I believe
an association with this group could help us achieve our goals. They deal primarily with mirgraine but have assured me they are also interested in CH.

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