Posted by Grant (18.104.22.168) on March 21, 2001 at 02:44:10:
Although I have been here many times, this only my 2nd post. I don't usually like to talk about it with anyone at all. But I'm AMAZED with the number of people here.
I have had 'skullcramps' for about 20yrs (diagnosed about 17yrs ago). I usually have them about 1-1/2 yrs apart for 4-6wks. (They seem to be getting further apart). Been through everything, from (pls excuse spelling) Prednisal, NovoGesic, Inderal, Propanolol, Deltasone, Sansert, Fiorinal, Xanax, Cafergot, Imitrex (good, but expensive), the old favorite (if you have a month off work) demoral(?), and the new favorite...oxygen.
A couple of times over the years I gave up on everything and tried an acupuncturist, herbalist, etc... but for the last 2 bouts I have been trying to go med-free. I know this sounds crazy (I'm not in pain now so its easy to say) but I was sick of the non-decision, ignorance... of traditional drs. Temporary relief, but nothing more.
I may say its not as bad as it was, but it still can make me cry like a baby. SCARES THE SHIT OUT OF ME! Its funny how the absense makes the heart grow fonder (or hate less, or forget...) until you get hit again.
I don't know anyone else that really knows about them (other than family, friends, because of myself), let alone actually has them.
Only you can know the difference that THEY make to your life, job, etc...
Typical questions/reasons the 'un-experienced' ask/give include stress (yes), seasons (no), sunlight hours(no), diet (no), alcolhol (yes), cigs( yes), but I know lots of people that SHOULD be more succeptable if those were the only criteria.
After reading Doctor Greg's bio, I am literally in tears. For someone to go through this 'little slice of hell' for 50% of the time for that long only makes me think that 4wks in 2yrs is a 'walk in the park'. I HAVE THE UTMOST RESPECT FOR YOU. In addition, my heart is with all of you, in that you are the only ones that truly know what it all about.
Thanks for being here, God Bless, and over and out!
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