another night from hell


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Posted by tami on April 04, 1999 at 23:33:00:

Pretty soon you guys will quit reading these things from me. Makes me feel better to have a place to vent though. Being on vacation did not help like I hoped it might. Had hopes that the inderal would be working by now, and could get on with my life. No such luck. Wore myself out driving home from vacation. Sometimes i am my own worst enemy. I feel like i can never go anywhere or do anything, my husband treats me like an invalid, and I get so mad i could just scream. So of course to prove everybody wrong, i decided to drive 800 miles to see a girlfriend. Trip up was good, but drove back in one day. Took me forever, and about killed me. I am just so tired of not being able to live. Anybody else out there have moments like this, or just me? Also, what is the norm here for frequency of pain meds. Feel like some sort of drug addict if I even ask, but spend at least 8-10 hrs a day in excruciating pain (as you all know)Right now I have nothing but oxygen, which is kind of hit or miss. Last two weeks have tried amerge and zomig. Anybody have any luck with these? My dr. limits me to two every other day. Is this normal? Don't want to be a whiner, but would just love to find something to take away the pain.I am still so amazed at all of you who wrote looking for me. That is the greatest thing anyone has ever done like that. I know this is getting long, but now that i have an "official" diagnosis I am in a hurry to make something work. Currently taking 120mg inderal and using O2 for pain. Have previously used midrin, amerge, esgic, zomig, and imitrex tablets, none of which helped at all. Also have tried stadol, and imitrex nasal, which help, but make me very ill. Have seen all of these drugs talked about here, but no-one says anything about getting much relief from them.I have so many things to catch up on ( i am supposed to be studying for my CFP, but it is so hard to concentrate)Should I expect to see the inderal kick in at this level? Is there anything that is safe to take as often as i need to? Seems like the more i learn, the more questions I have. Would be nice to be able to talke to my husband about this, but he is convinced that headaches have to be caused by something, and keeps pushing me to find the reason. Have tried getting him to read CH literature, but hasn't worked. Meanwhile, my weight has fallen again, weighed 86 lbs this am, don't have any more to lose. Can't afford much longer of a battle with this thing, at least for this round. My internist says i run a strong risk of a heart attack or other complication with my weight so low, and that was 10 pounds heavier. I know most have you are bored to death reading this, but whatever comments you would like to make i would appreciate. So far, have got lots of useful info from all of you. Thanks, Tami


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