Posted by NickD (126.96.36.199) on April 23, 2001 at 11:26:07:
In Reply to: Best things to tell the neurologist posted by Gary on April 23, 2001 at 07:58:33:
and state that you have CH's so much depends on your ability to use the English language to communicate your symptoms. Even at that, depending upon the doctor, some are arrogant, and if they missed that 2 minute lecture on CH's in med school, if they didn't hear about it, as far as they are concerned, it doesn't exist and you are some kind of fruitcake. I only found one neuro that actually could explain the nature of these headaches, knew all the treatments and openly admitted it was a guessing game, such is rare indeed.
I found it useful to make a copy from a reknown medical text explaining the symptoms and presenting it to an unknown neuro in a humble fashion as this best explains what I am going through. A good neuro would insist on the typical scans to outrule other problems such as brain tumors.
I could probably write a long book on how I was bounced from department to department in a large reknown clinic for over ten years with all negative results in dealing with these headaches, even involving the chief medical examiner of the FAA in Washington DC. After all that hassel, O2 is my best treatment, but not only O2, but using it properly, O2 is used improperly can trigger CH's. Wish you the best.
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