Cluster Beast

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Posted by Dana Cooper ( on May 02, 2001 at 13:38:30:

Hello Everyone my name is Dana Cooper and I've suffered from this beast for many years 1984-present.
Yesterday I had a killer headache so bad that I actually took a fingernail and scratched the side of my face completely raw. I'm sure we have all felt the fury of the beast when it's at fuul strength. Of course right now I'm not in remission and I walk around in panic never knowing when the next attack will occur. Yesterday was the biggest I've had in 10 months severe nausia, tearing, throbbing, nose bleeds, seeing spots, light & sound sensitivity, and sweating profusely. I work outside and somedays I will survive the whole day but, between 1:00 and 4:00 AM the next morning I'm usually awaken very violently with the beast ripping my head apart. I don't know if anyone has ever tried the intranasal lidocaine, but it will give temporary relief for about an hour. Unfortunately when I read this from the JAMA I was laid off and could not afford to see a doctor,so I did my own medicating. My wife being a dental assistant accidentally bought it home in the pocket of her lab coat and I decided to go on line and get the directions on how to administer it. I've had some relief from it, but when the beast really wants to come out and play there's nothing you can do to stop it. My headaches sometimes will visit as many as 5-8 times per day and sometimes it may even skip a day yesterday's headache lasted from 12:30 PM - 8:40PM (All Day). God I can't wait to go into remission, the pain is so intense sometimes I want to just cut off body parts to divert the pain. Good luck everyone with your BEAST and the treatments.
Dana Cooper

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