We're getting carried away here......

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Posted by Simon ( on May 17, 2001 at 04:03:48:

In Reply to: Migraine sufferers... posted by Paco on May 16, 2001 at 23:40:06:

As I said below, there are people with clusters AND migraine and they are welcome here. Those exclusively with migraine are welcome too - to read and inform themselves, but not to ask questions about migraine as it affects them. That takes away the purpose of this board.

I had migraines until I got clusters. Then I stopped. That, to me is conclusive proof that there is a link. What that link is I don't know, and I leave to someone else to figure out. Every survey I've taken part in that has been medically organised has asked questions about other headache types, epilepsy and other neurological conditions that I have, or that other family members have. Clearl the medical profession investigates those links.

Remember, I said, those who do not have cluster headaches should not post here about their conditions.

We have allowed people with clusters and dogs to mention their dogs; those with clusters and religion; those with clusters and rather suspect politics; those with clusters and relatives getting married; those with clusters and new grandchildren; those with clusters and sense of humour; those with clusters and cameras that take pretty pictures of the sky, but not those with clusters AND migraine.

Finally, the Migraine Asssociation here in the UK have been a great help to us. They organised the meeting in London on June 9th, and are allowing OUCH (UK) to use it as their launchpad. They recognise that they are not qualified to help clusterheads as we are, and want to help them by pushing them in our direction.

Migraine is different, it is not as acute, it is not as life-threatening, but it is unpleasant. We do ourselves no favours if we regard it as being more anathema here than extremes of religion, politics or taste, when discussed by clusterheads.

And please remember, I believe that clusterheadaches.com is here for clusterheads, whatever else they may have.


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