Posted by Donna (22.214.171.124) on May 20, 2001 at 20:28:24:
Here we go again. We (Luckily) have our monthly bunch of newbies flexing their muscles. A very healthy sign.
And then we have our "oldies" resenting anyone trying to change things around our neighborhood. Let's try to have a meeting of minds here.
#1-DJ founded this site with the purpose of throwing a life-line to those with clusterheadches. Seems like every other disease has it's own place. Why not us? We need this place. We need our cluster family and we need to work together to be recognized!
#2-We also need our supporters. We can help other supporters who don't know much yet about our problem.
#3-We get tired of saying over and over "look at the info we suppy by pushing the buttons at the left". People who are in pain and happen upon our site are so excited to be with other sufferers that they just jump right in on the mb. Seems to me that we might need "button volunteers" to gently nudge them in the right direction. I'll take "button-duty" on my days off, for heaven sake. But we need someone for this new week starting tomorrow.
#4-There is a wonderful site for "all kinds of headache pain" just over the next hill. It's at http://www.headachesupportgroups.com If you don't belong to the clusterfamily, you will find kin there.
#5-Same old song. Sing it again. But if you don't like the music, move on. Don't answer posts that don't interest you or don't benefit our family. Ignoring pests, snake oil peddlers, etc. is known to be more effective then sparring with them.
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