Posted by Dennis O'C (18.104.22.168) on May 22, 2001 at 00:52:40:
In Reply to: Help please, I dont know what to do anymore posted by bobbagels on May 21, 2001 at 23:15:05:
...amidst all the silliness at this site...for which i for one am most guilty indeed...a way to manage or abort yer daughter's Clusterheadaches exists here.
I know that sounds to good to be true...but we here as fellow sufferers of the worst pain known to man...have found...collectively...ways to manage that dibilitating pain...
NOW FER THE BAD NEWS
Why does she have them?...there is no known reason.
What causes them?...Researchers around the world are working on that...no one knows....yet.
Will she have them fer the rest of her life?...this is the worst news of all...it seems so.
THE GOOD NEWS
She and you are not alone...at this site you have just joined the largest group of Clusterheadache sufferers in the world...many of us having tried every drug imginable from every good Doc in the country have found certain substances that work.
There are preventatives...used with abortives...that have given many of us back our lives...
BACK TO THE BAD NEWS: Nothing works for everyone...that is the ultimute frustration of Clusters.
BACK TO THE GOOD NEWS: the majority of true Custer sufferers that research every inch of this site finally find some way to manage their pain without committing suicide....it takes time and the cooperation of a physician who is willing to help.
Frustration is a given here. Feel free to let it out. Bring yer daughter here. We have all been to that edge. Some of us live there.
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