I agree, to a point...

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Posted by DJ ( on May 26, 2001 at 03:00:17:

In Reply to: Survey posted by Gordon on May 26, 2001 at 01:17:34:


Yes, you are correct. If people submit their information more than one time, it would skew the data. There isn't much I can do with the current format of the survey to keep folks from adding info more than once other than putting the statements I do preceding it, including:

If you have already submitted your information, DO NOT hit the "Submit" button at the bottom of the page. Instead, push the button below to see the current stats.

The survey basically relies on the integrity of everyone who fills it out.

I could make the stats more "realistic" by asking certain questions and weeding entries down to only those who I think have clusters and haven't filled in the form before, but then I'd be skewing the data with my own personal beliefs of who has clusters and who doesn't... who's filled it out befoe and who hasn't... blah, blah. That's the type of thing I've gone out of my way NOT to do on this site.

The surveys are meant to give folks a quick reference as to what might work, and what might not.

For example, with all of the information I've sen on the site in the past few years, the abortive and preventative suggestions on the survey are DEAD ON with what I would personally suggest to a new suffer...

Best Abortive Suggestions:
1. Imitrex injections
2. Oxygen

"Don't waste your time" Abortive Suggestions:
1. Amerge
2. Migranal
3. Herbal Remedies

Best Preventative Suggestions:
1. Prednisone
2. Verapamil

"Don't waste your time" Preventative Suggestions:
1. Accupuncture
2. Chiropractor
3. Ritalin

I also understand your point about people not wanting to sift through posts or learn how to use a search engine. However, until we have our "magic bullet", the more research and information a new sufferer can take in about our condition and apply to themselves, the better it will be for all of us in the long run.

Chances are... with as little is known about clusters, if a set of treatments were "set in stone" anywhere, we might not have the eye opening information we have on things like mushrooms!

What do you think about that?

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