Posted by Ken on June 30, 1998 at 10:52:38:
In Reply to: Re: Possible media blitz? posted by DJ on June 29, 1998 at 21:40:19:
DJ,
It is evident that there is a ‘Cluster Sect’ out there and we are all lost souls looking for the ‘Gathering’ place. The Internet is our mode of transportation and we have found our home on your web page. As individuals we are helpless, but as we unite on your web site we will become an entity which will be hard to ignore.
I believe this web site could be our first stronghold in our battle to motivate the medical science community to find a cure and educate the rest of the world. We are unique in the fact that we are relentlessly searching for our own treatment and cure. We are battling an enemy which cannot be seen and the association with the word ‘headache’ is our worst enemy.
I have always felt that God has given me this disease for a reason. A test maybe? As we endure each cluster we must be getting stronger, wiser or more patient. I would hate to think we suffer this terrible pain without gaining some benefit.
Thanks for taking the time to start this site. Maybe one day we’ll all get together for a Cluster party. I’ll bring the Imitrex and oxygen………..
Ken