Posted by Paul Spears (184.108.40.206) on June 19, 2001 at 10:21:38:
I've suffered from these deamons every 3 -4 years, ever since I can remember (I'm 45). This is my worst and longest cycle yet (5 months). My Neuro has me on 2 - 240 MG of Verapalin per day. Once I get an attack, only the Imitrex injections can abort quick enough. I have recently prescribed myself 9MG of Melatonin each night, initially with 8 days of immediate relief. Then the Clusters found a way around it.
I am now researching the Mushroom theory for the purpose of breaking the cycle. I would appreciate hearing from sufferers who have tried this treatment. I am a bit confused about the proper dose?
As all of you know, these monsters effect your life - your family doesn't know what to do, you watch your body go downhill, weak from the daily pain and effects of the drugs you're taking.
I don't think it would be vein to say we're a tough buch of folks - an elite group that none of us want to be a member of - given the choice. We take the pain, and the first pain-free day we bounce back...appreciating the relief, making the most out of life trying all the time not to dwell on the anxiety of the next attack.
Good luck to all - there's better days coming!
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