Son with CH

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Posted by Van ( on June 21, 2001 at 23:30:33:

In Reply to: HELP!! My 4 year old has been diagnosed with CH!! posted by Carla on June 21, 2001 at 23:18:43:

Extremely sorry to hear about your son. May I ask some questions, then more of the group can have input also.

a. Are you new to the site?
b. Have you read all of the information on the site?
c. Did you do a search of the site, perhaps using "children" as the search word?
d. What type of doctor made the diagnosis--family practitioner, neurologist, pediatrician, other?
e. At four, they cannot describe pain well. How would you describe what you see?
f. Day or night or both? If at night, does it wake him up?
g. What was tested to rule out everything but clusters? MRI, EKG, CatScan, ??? Headaches are signs of many things, check them all out.

Please answer the above. good luck

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