Carla, this board is ready to help in all kinds of ways. This is also

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Posted by Charlie S ( on June 22, 2001 at 01:33:53:

In Reply to: HELP!! My 4 year old has been diagnosed with CH!! posted by Carla on June 21, 2001 at 23:18:43:

a place where you won't feel alone. There are many here who have to endure watching a spouse or relative suffer. When children are struck with this kind of horror, it makes us all wonder. Our sense of proportion is shaken.

I read somewhere that the Universe is our enemy. It's out to get us; and it will in time. Our job is to beat the crap out of it and survive as long as we can. Your child has been asked to do too much, too soon.

Let us know how you're both doing and we are here for support and now and then some good ideas.

Charlie S

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