I don't know what to say...

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Posted by shelly ( on June 22, 2001 at 21:10:24:

What the hell, I cannot believe that there are so many very young kids with clusters. No news here, but doctors are out of touch, and when it comes to clusters, and then add children to that...shit. I am so frustrated. Has anyone video taped their child having an attack? I know that it's come down to that for my situation, so I'm going to scare the hell out of some people. Really the horror of actually seeing this thing invade and attack my child...Oprah, the Today Show, maybe Dr. Andrew Weil. I know many have tried to get the attention of some of those shows, but maybe a child's pain would stir something. You know, I remember when Donahue had a program about kids and severe food allergies causing extreme mood swings. It alone, really forced doctors to look at those unique situations differently. Hell, my son is do for a big hit any day now...I'll make sure it's taped. Anyone want to join me? I think I'm even going to send this to all of the doctors we've seen, and the ones I hope to get in to see. Terrified is what I want them to be. Shelly

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