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Posted by Dave Emond ( on June 28, 2001 at 13:38:04:

In Reply to: Cause for alarm? posted by Dave Emond on June 28, 2001 at 05:00:59:

Thanks to all who answered here and by e-mail.
I've actually been around these boards for 3 years now, just don't post that often. My wife and I had attended lasts years OUCH convention, but couldn't make it this year.
I had mentioned to Kip the "mini" attacks while in Vegas last year, and he had said they were not to uncommon.
My wife (Annette) is very supportive. But it kills me for her to have to go through this. I get about 2 or 3 attacks during the day, but the onslaught usually comes in the evening into the night. When I can be hit 8 to 10 times. In her brief time home from work until she has to go to bed, I usually have my worst attack of all. So she goes through that with me night after night. I can't lay down. This will surely bring on an attack within minutes, so what sleep I do get, I get sitting up. (About 4 hours in the morning time). So, although she is very strong and supportive, and also comes to these boards... we just really miss each other. This Beast has stolen her husband, and for a very long time this go around.
I have found a new neurologist, who is giving me Topamax, oxygen, and Imitrex nasal spray. I've not been on these for even a full month yet.
I do not drink.
I cannot work now either. I don't know if it's fatigue or previous improper meds my PCP gave me, but I have serious dizzy spells. Not all blurry. just ... I see the wall, I know the wall is there, I just didn't intend on walking into the wall! I try to do simple chores around the house to keep my strength up, but weaken quickly.
And again I don't know if it's my stubborness and stupid pride in trying to do work I shouldn't, or reaction to improper meds, or result of seizure like rampages I can go into when hit with a full blown kip 10, or just a plain and simple hernia. But, I can't lift much more than 10 lbs without my stomach tying in a knot. (I'm going in for an ultra sound on the 18th).
Hmmm... this hasn't been my best year.
A lot of what make me nervous is that I have plans to go into my own business this year, in the floor installation area. I've completed all the neccessary work paper wise, and am ready to do business. I've got companies waiting for me to open my doors, I've got the talents, skills and business sense to run things ... now I just need a functioning body. One I can count on to provide for my wife, and not get us into trouble.
The individual days with CH are endless, but for any plans or other goals, time sweeps by so quickly.
If I'm meant to be chronic, I'd have to find another line of work, can't help but be nervous.
Ain't giving up, I'll take what life gives me, would like a jump start though if possible to try to beat the beast another way if he thinks he can tear me down by making me chronic ... but ... I really rather not,
Dave PFDAN's

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