Posted by Charlie S (22.214.171.124) on June 30, 2001 at 03:36:01:
want that, we understand.
Personally, I don't think much of the allergy connection with CH. We like to find something on which to blame this but I'm older and perhaps jaded (54). Like you, my life hasn't been all that wonderful. I've had epilepsy for 42 years, have never had a drivers license and our family was in the auto parts business. Just about 10 years after my seizures began, I was hit with CH.
What a nice combination. Fortunately, because epileptics always see neurologists I knew a good one. I learned a strange and not easy technique that helped me a good deal of the time. I'll add it at the end of this post. By the way, after I quit smoking my olfactory senses got back on line. I quit in 1980 but the CH stuck around for another 11 years. In 1991, they went into remission and I've been free of the thing for all that time. It has nothing to do with the technique below but I suspect it may be my seizure drugs may have had something to do with it. I've taken Phenobarbital, Dilantin, Mysoline, Depakote, Topamax, and now Lamictal. The only drug I still take is Mysoline. The generic is Primidone. It's more often known as that. I've never heard it used for CH, but who knows? Still it took 30 years for that to kick in. Maybe that in combination had something to do with it. Still, I don't take the older drugs, and my new ones, I've only had for a couple of years. Lots of seizure drugs are used for CH. Stick around here and try everything. Usually there are one or two things that help.
Here is the post:
Dr. Wright's Circulatory Feedback
This is not TM, imagery, relaxation, or anything psychic. It's entirely physical and takes a lot of work and concentration. Give this method a good workout. With it, I knew I had a fighting chance.
When I was diagnosed, my neurologist said to treat these as a vascular problem. As odd as it sounds, I was told to concentrate on forcing blood-flow from behind my throbbing eye, down my neck and into my arms and hands. When properly done your hands will become warm and redder with increased circulation. I also found it much easier to concentrate on one hand.
What this does is relieve just slightly, the pressure on the affected vessel which causes our pain. We all have this ability but it can be exhausting. I was often able shorten my attacks from about 40 minutes to no more that 15 o
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