Posted by TerryS (24.24.79.72) on July 09, 2001 at 11:51:39:
Hello Terry!
I am a 36 year old CH sufferer, thankfully I am in between clusters right
now....I work in Elmira, New York, I am currently the morning show producer
and also do some anchoring as well. I have wanted to produce a CH video for
sometime now, finally I have the resources to not only produce this video
but also a means to have it broadcast. But I will need YOUR help. I need to
get in touch with anyone who would want to donate some time to talk on
camera about your experience with CH's. Please e-mail me if you are
interested or if you know of anyone who would be interested. Here's a basic
plan for the video:
1) Get interviews from sufferers - we will tell of the relentless pain, how
we deal with it and what it has done to our lives.
2) Talk with spouses/significant others/siblings on how it effects their
lives - how they try to console the sufferer and how they cope themselves
with the stress and helplessness.
3) Talk with employers of sufferers - how does our illness effect their
business/company? How many working hours are lost to Cluster Headaches? What
have they done/can they do to accommodate the sufferer?
4) Interview a neurologist on the medical aspect-drugs available, side
effects, techniques used to alleviate the pain, triggers (alcohol/smoking,
etc) Effects of light and sound, etc.
My goal obviously is the same as yours - to get the word out in hopes of
getting more funding for research to find a cure and perhaps getting our
disease on the "Disabilities Act" list to give us more support in the work
place. I feel putting an emphasis on number 3 is important - Let's make
employers aware of the lost hours and direct effect on their business and
hopefully make them realize that we have no control over the disease and are
incapacitated by the bouts. We will hit the viewer with stories from the
heart...and wallet.
I see this as being a 60 minute program. I can guarantee that it will be
aired on this station. We reach over 50,000 viewers. Our station is owned by
Seattle based Ackerley Communications. They own about 15 television stations
across the U.S. including Alaska. I will push that the program be aired on
ALL Ackerley stations. Furthermore we are an NBC affiliate and I plan to
solicit the program to ALL of the NBC affiliates across the country.
Finally, once a program has been produced, I will also try to get it on PBS,
The Discovery Channel and The Learning Channel. Once we have accomplished
all that, then we can pursue getting airtime on Oprah, 60 Minutes, etc. It
will be easier to get spots on National talk/news shows with a product in
hand - something they can refer to. Sound good? In addition, I can cut
chunks out of the video to produce 30 or 60 second PSAs
I am ready to go pretty much at any time. All I need is to get some folks to
talk on camera. Can you steer me towards some people in the Upstate New York
area or Northern Pennsylvania (or from anywhere- if they can come on their
own) who would want to talk for the cause?
How long will it take? It's hard to say - it really depends on how many
interviews I can set up and when. Hopefully within 3 to 4 months at the
most. Also, if you have any video or pictures of the conventions I could
work those in as well.
This project will be shot on Betacam format and mastered on the Media 100
digital editing suite. Copies and transcripts will be made available to
interested parties (unfortunately a charge will have to be attached to the
video to cover the cost of the tape and shipping/TBA).
My e-mail address is ancp@yahoo.com any information would be greatly
appreciated.
-Aki Peterson
Producer - WETM-TV, Elmira, NY