Just thought I'd share this with you.

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Posted by Bob P ( on July 17, 2001 at 22:23:01:

Hope you guys don't mind I volunteered you as research specimens. I know some people saw this interview.

News Release

June 28, 2001

From: 3120 Professional Drive
Contact: Joel Cook Ann Arbor, MI
48104-5199 Public Relations
(734) 677-6500 x 208

Migraine Misery:
The Agony of Cluster Headache

For Immediate Release

Ann Arbor, Michigan, June 28, 2001- On Wednesday, June 13, Dr. Joel Saper
made his fourth appearance on "Good Morning America". The ABC morning show
featured a patient who suffers from cluster headache and was successfully
treated at the Michigan Head.Pain & Neurological Institute, in Ann Arbor,
where Dr. Saper is the Director. The story covered the severity of cluster
headaches, a serious, painful headache disorder that has at times resulted
in suicide. Mr. Dan Skopek, one of the institute's patients, was featured
in the interview at his home with his family.
Cluster headache is perhaps the most sinister of the well-recognized
headache disorders. Few headaches surpass its ability to cause panic, rage,
and serious thoughts of self-destruction, and few headaches challenge a
doctor's knowledge, compassion, and treatment skills more than cluster
headache. "Patients will often cry or scream or pace or pound their heads
or their fists against the wall," stated Dr. Saper. "It's a devastating and
torturing experience."
The term "cluster" was first used to describe the clustering or
sequence of bouts of painful attacks (lasting about an hour each) that occur
from weeks to months at a time and then stop spontaneously. Up to 8-10
attacks may occur per day, frequently during the night or during restful
periods. The headache cycle may return months or years later. These
"cycles" are most common at the beginning of spring or fall, but they can
occur at any point during the year. Most people with cluster headache have
blue or hazel-colored eyes and characteristically exhibit similar personal
and life habits and behaviors.
If you are interested in obtaining more information on cluster
headaches, or would like to interview Dr. Saper or a patient who suffers
from cluster headache, please contact Joel Cook at (734) 677-6500,
extension 208, or via email at jhcook@mhni.com.

----- Original Message -----
Sent: Friday, June 01, 2001 1:41 PM
Subject: RE: Cluster Help

> Joel,
> Thank you for your invitation to use/link the information on your site.
> We currently have a committee working on gathering all the best
> cluster headache information on the web. We want to compile these
> links into one easy to use web page for the sufferers to use. Lord
> knows, when you're fighting clusters you don't want to be hunting all
> over the place for information. I'll be sure to pass on your
> information to them (although I would bet they already have it).
> I notice that you conduct research. If you are ever doing cluster
> headache research and need subjects, be sure to let us know. We have
> many members who are very anxious to be part of the cure for this
> disease. We have some who have been part of Dr. Goadsby's hypothalamic
> studies in London already.
> ~~~~~~~~~~~~~~~~~~~~~~~~
> Bob Pahlow
> President-Elect, O.U.C.H.
> -----Original Message-----
> From: jhcook [mailto:jhcook@mhni.com]
> Sent: Friday, June 01, 2001 4:04 PM
> To: Pahlow, Robert A.
> Cc: jhcook
> Subject: Cluster Help
> Hello, my name is Joel Cook, I work in the public relations department
> at the Michigan Head.Pain & Neurological Institute in Ann Arbor,
> Michigan. We treat many patients who suffer from cluster headache at
> our Institute. On our site we have a FAQ section devoted to Cluster
> sufferers. Our site is www.MHNI.com. Please feel free to use the
> information on our site to help the families and individuals who suffer
> from this illness. If you would like to call me you can do so at (734)
> 677-6000. Thank you for your time and consideration.
> Warm Regards,
> Joel Cook
> Public Relations

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