Can't touch this ... ?

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Posted by Dave Emond ( on July 27, 2001 at 14:52:09:

Hi Gang,
I may be just going into a state of paranoia, but I'm getting a bit nervous these days. I wonder if any of you experience this?
I can no longer touch the right side of my face or neck. The slightest touch to my skin sends my nerves into a frenzy! My temple, eye and neck are the worst, but even my forehead or surrounding area can cause great pain.
My neurologist has increased my dosage of Lithium, and now added a Trigeminal Neuralgia drug called Tegretol XR to deaden the nerves in my face.
But, this has all made me quite paranoid, oh shoot ... very scared. The drug interactions are pretty severe along with the Imitrex Nasal. So now when I have an attack, I'm afraid to use the Imitrex, and I can't even grab my head anymore. No more cold or hot towels, no more pressing my head to the floor or wall, and no more grabing at the pain! I don't know what to do, I'm in a constant heavy shadow all the time, in fact, it feels worse than the shadows I'm used to.
My neurologist is really trying to help, but said after 17 years of dealing with CH victims, I'm the first she has not been able to at least comfort, and it was possible I was going chronic. (Wish I hadn't asked that question!).
Does anyone else get sore like this? I have no bruises, as I thought maybe I have been pressing to hard on my head during attacks, but there is no evidence of that.
I usually try to be one of the optimistic people in here, but now I'll flat out admit I frightened. Every pill I take makes me think of the serious side effects and every time I accidentally touch my face the pain adds to that nervessness.
Anyone know anything about this? I've more than doubled my normal cycle this year, so maybe the length of time has something to do with it? Please, I'd appreciate any information anyone might have on what is going on with me. Sorry for the whinning, but I'm at the end of my rope and my hands are getting tired of holding on.

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