Phew - someone else (this is pretty scary BTW)

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Posted by Muscle Fascillations ( on August 01, 2001 at 04:44:56:

In Reply to: Clusters and Myoclonus Jerks??? posted by Brooke on July 31, 2001 at 15:51:34:

Me also in the past 6-7 months. The scary thing is that there is only really 2 things can cause this. One is very nasty and incurable with virtually no treatment available. The other is completely harmless and also with no treatment available. Most people have the second one. There is a test for the nasty one, but it takes so long that you usually know by that time anyway.

In my case there is barely a muscle in my body hasn't twitched over the last 6 months. Muscles I didn't even know I had have twiched. Sometimes the twitching lasts a few seconds, sometimes it lasts a few hours. It has been scaring the shit out of me. In terms of cause I have 4 theories:

1) I took a 90 day course of the antifungal medicine Lamasil just exactly prior to this starting.
2) I had a really bad (and after 15 years I do mean REALLY bad) week of clusters (consisted of 6 x #10s lasting 3 hours each every day) 3 months prior to me noticing the twiching.
3) Bad luck.
4) This theory is secret. You wouldn't understand.

Anyway please keep me updated by email as to your boyfriends condition. I could really use someone else who is going through the same thing to talk to. I have never been so scared in my whole life. I'm just waiting and hoping that nothing else happens over the next 6 months.


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