Posted by mo (188.8.131.52) on August 02, 2001 at 16:48:01:
In Reply to: Grants posted by Todd on August 02, 2001 at 15:06:36:
Whilst on our travels in Virginia we met a chap at a Hotel we were staying at whose last job was working within an organisation that gave out advice and handled the admin for small not-for-profit organisations who weren't large enough to employ anyone to do it for them (sadly he's moved on to other things since then, so cannot help OUCH personally - and the company he worked for has now folded). However, we told him of OUCH's aims and aspirations and asked him how best you could start trying to get funding in the States. Yesterday he emailed me with the following:
"I did some poking about as promised and came up with the following three sites. One is a general listing of neurologically orientated sites with a good list of links to other similar sites. The others are for the American Neurological Association and the Society for Neuroscience. I hope they are of help to you. I think the best course of action to get support for OUCH's work, programs and mission is to see if any of the societies has a task force or committee that focuses on cluster headaches. Contact them to ask if they would be prepared to release any funds for OUCH - or if they know of anyone with an interest in this area that would"
Hope this is of help to your project team Todd. Certainly you'll need to put together a succinct letter explaining the severity of the condition, the aims of OUCH and what you have achieved to date as a self funding self help group. In the UK the response to a document like this is usually to decide whether the Charity you're applying to might be able to help within their remit: if so, they will then send out their own Application Form for you to complete for consideration by their Trustees (who typically usually only meet once or twice a year to decide who gets what funding, if any). Don't know what it's like in the States, but over here it's a long, drawn out waiting game!
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