Posted by DaveH (184.108.40.206) on August 27, 2001 at 00:13:35:
In Reply to: Dave, this is about running for office .... posted by stevevr on August 26, 2001 at 23:54:58:
I do not want us to join Migraine groups, I do not want that in any way. I want us to start working with them to find out who the contacts are for drug companys and how they got to them, I want us to talk with the people at the top of the migraine groups and get all the information we can that will help us move in a forward direction that will get us the voice we need so that there is public awareness about our condition.
I honestly feel that trying to get a cure at this early point in the game is foolish. We need to focuse on getting all the inside information that we can to get the name OUCH and the word Cluster headaches known as well as migraine. Once that is done then we can work on employers and the understanding of the needs of employees.
This is what I want done with OUCH. This is where I want to take OUCH. It is about using a resource that is there waiting to help us to get our voice heard and our issues understood.
I hope this clears things up.
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