Posted by Sharon (18.104.22.168) on August 28, 2001 at 16:46:43:
In Reply to: We must use what we've learned to do something now! posted by Dave Emond on August 28, 2001 at 15:35:56:
WOW! Thank you for your thoughts. We took the quiz together. So I was able to soften some of the vocabulary. Plus I don't want him to see the site. I don't want him to know what potentially may be in store for him.I feel so badly for all of you sufferers. I pray EV (my son)has been misdiagnosed. After reading some of the dibilitating affects of CH. He does seem to resemble migraine aspects and some CH aspects. I am taking your advice and getting the 3rd opinion (we have 2 now). You see I agree with Dave, What if he has developed coping mechanisms to survive the pain. He says lights don't bother him but gets blurred vision from the pain!
Did any of you develop CH gradually? Did it just started happening one day,when you were a teen? I have read alot on your site and I have missed that info.
I set up a calendar today and would like any advice you might think of.
Thank you for your input and I will keep you in my prayers,
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