Exactly! .... Ted and Sharon

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Posted by Dave Emond ( on August 28, 2001 at 16:52:44:

In Reply to: Or, he was misdiagnosed. NT posted by Ted on August 28, 2001 at 16:18:12:

I do lean towards the idea he was mis-diagnosed.
Certainly if a doctor could diagnos CH, then why didn't he try any known preventatives or abortives?
That is why I think we can help. I've got a doctor appointment in about an hour, so will have to write Sharon tonight and get more details.
Ch or not though, this family needs help, and I think over the years we've found many resources to help send people in the right direction.
This is a perfect chance for us to learn how to go about creating a childrens diary. We want to be able to help find out if children do indeed suffer CH, or whether they need help elsewhere.
Anyway it goes, at this point none of us knows what his condition is, and we have no information on how CH might affect such young children. Maybe not to the degree adults do, I know mine change for the worse each year. What may sound "mild" to us, at age 4 an up through the childhood, we haven't a clue as to what may be warning signs of CH or something completely different.
I do believe we can help, and should. And I hope it is not CH or any other serious risk condition.
Sharon? Has your son seen a neurologist? This should be your first action. An MRI should be conducted also, to rule out other possibilities.
Hope I can contact you tonight and go into specifics and work from there.

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