Posted by Elizabeth (220.127.116.11) on September 06, 2001 at 10:09:39:
Hello. I'm happy to have found this website. I'm a CH sufferer as well as CPH.
Today isn't such a good day. I've been up for a little over 3 hours and am on
my 16th headache of the day - yesterday was a new record for me of 40, beating the
previous record of 27 in one day.
I'm tired of hearing "just relax" or "could it be something emotional that's causing
them?" or "it's not possible to have that many headaches" or "you're just doing this
to get attention".....
Okay, now it's 17 headaches today....aaarghhhhh.
Most of my headaches are around/in/behind my left eye. Occasionally it switches to
the right side. The past 10 days I've had added headaches where it feels like
someone hit me in the back of the head with a baseball bat.
Ice helps with the baseball bat ones sometimes.
I'm weary....exhausted....dehydrated (from crying)....frustrated....angry....losing hope.
I had MRIs, MRAs, CTs....all normal.
I guess that's where the comments (above) start - if it's not physical, then it must be....
They just don't understand that they ARE physical - so many people seems to assume that if
a problem is physical then it's possible to solve it, meaning that since there's no cure
and no apparent treatment that works for me, then it's all in my head....
I would love to tell them to f*** off!
Number 18 is on it's way: several floaters in my left eye, droopy lid, nose running, eye watering,
inside of my mouth on the left is getting numb - this one is gonna be a doozy...
Thanks for letting me vent.
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