Posted by Brian (220.127.116.11) on September 06, 2001 at 12:38:35:
I just left this message in the guest book and thought it might help to post here as well, since I am bound to be around this site for a while. I have been suffering from CH for about six years now. They started when I was 25 and are still going strong. I cycle about every 4 months and they last for about 2-3 weeks, usually 2-3 times per day. First I want to thank the webmaster and the contributors for this site. I was mis-diagnosed with chronic sinus infections / headaches four years ago and since then I have had two endoscopic sinus surgeries and have been on antibiotics about 8 months out of every year. I overheard a colleague talking about migraines and clusters yesterday, and last night I did a search on clusters and found this site. Anyhow, I have been avidly reading all of the information contained here since that time, and I cannot tell you how grateful I am to finally have a name to put to my condition. The pain is still here, but at least I know what to call it, and hopefully someday how to deal with it. I cried last night, not because of the pain, but with relief that after six years I finally know what I have. So, the anti-biotics, nasal sprays, and various other junk went in the trash this morning. Now, I need to find a doctor that can help. I can't wait to fire the bastard who missed this four years ago and has been filling me with toxins since then. If anybody knows a primary care physician in the South Denver / Littleton area that has helped, please send me an email or add a post. Thanks in advance for all responses and for letting me vent!!
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