Very possible

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Posted by Todd ( on September 09, 2001 at 21:49:10:

In Reply to: Is it possible that Connor could have migraines and clusters??? posted by Carla on September 09, 2001 at 20:50:07:

It's also possible that Connor has neither CH nor migraines.

Both of these disorders rely heavily on the patient's ability to describe them - - within the parameters set by IHS. With CH, one indicator is the intensity of the pain. To a 3 year old, every pain is the worst imaginable. Now, ask him if the pain is throbbing, pulsating or constant and how can we expect an "adult" answer?

Carla, even doctors can't diagnose CH without patient input, so don't beat yourself up for being confused. At the same time, recognize that Connor can't possibly describe such a thing in adult terms, and thus it becomes incumbent upon you and Dad to do the very best you can to interpret.

If you haven't already, start a HA Diary. Log every detail, no matter how small, but also try to resist the "Mommy" influence and be as objective as possible. No slam intended by "Mommy influence" - all I mean is that it's tough as hell to be objective when it is your child that hurts.

Clusters have no known cause or cure. The diagnosis can't be done with a blood test or urinalysis or anything's solely dependent upon patient description. I'm sure Connor is a very bright young man, but he can't possibly discourse intelligently with Doctors, so you have to do it for him.


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