Thanks, DJ...

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Posted by Wiley ( on October 01, 2001 at 01:14:11:

...(and all the GREAT contributers to this site) for being here. Obviously I am new here on the message board, but I've been "hidin' and watchin' " since my current cluster started in July. It's wonderful to see such heartfelt support and encouragement - as well as the odd screwball posts from time to time!

I live in the high desert mountains of southeastern Arizona, am 55 years old and have been a clusterhead since 1989. My father, a (now retired) physician was likewise afflicted for about 25 years, but has been free of the demon now for about many years. There was substantially less information about CH when his began, and oxygen was considered the main theropy. I has since inherited his well-used oxygen system and use it regularly. My current string of dances was preceded by a 2 year break and has proved to be a most interesting series. These started on the left side late in July. On August 28 at 11:18PM, however, the unthinkable (even for a CH!) happened: A 2-sided Kip-9 headache! Thought the entire front of my face was coming off! Now, THAT's the one to wish in bin Laden! Since then, they have all been on the right side only, thank goodness.

I have developed a very useable log for keeping track of them and would be more than happy to send it to anyone who would care to have it. It is in MSWord format and is about 105KB. Just drop me an e-mail and I'll ship it right back to you.

Thanks again to everyone.

...and above all,

Wishes for PFNADs!


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