Posted by Jim R on October 28, 2001 at 05:33:20:
the indocin does not seem to be benefitting me at all, although I do not know if I have to build it up in my blood over days. Maybe this just tells me I do not have CPH and indocin is supposed to be absolutely effective on those. Awoke with one 1 hours after falling asleep, around 12:00 midnight and another at 5:00 am this morning (why I'm here writing this). It's coming down to the only things that control this are O2 to lessent the pain while the narcotics kick in. I DO NOT WANT TP BE ON NARCOTICS. Nothing else seems to be working. The O2 only lasts a max, of 30. min. Percocet makes me too nauseated and spacy and I've gone back to a 1/2 tab of vicodin. I'm exhausted, depressed, anxious, and constipated (narcs) and completely desparate. I'm getting a referal to a neuro Monday - I can't live liek this. I don't want to live a drug hazed, addicted life. I don't want to live with the pain. I feel lousy all the time. I've tried almost everything but steroids and the docs won't put me on those. My blood pressure, despite doubling my BP meds., is steadily going up: 163/103, 153/103, 175/98, 170/99, and this morning 163/111. The last reading meets criteria for hospital admission for hypertension. I am at my wit's end. My own doctor said "if thesee truly are CH..." like after 22 years and multiple dx. of same, they aren't, "...indocin is the standard treatment...) - yeah - if I have CPH, which I don't - doesn't any doctor know anything about these? Do they care? I hate condescending, arrogant physicians! Like they have the corner on reading and learning and patients have nothing to bring to the table. What do I do. I can't just keeping going to the next narc every 4 hours! I NEED SOME HELP! I don't want to live like this. My wife is in shock watching me with these. She can't believe the pain levels