Hi Janie

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Posted by Todd on November 15, 2001 at 21:13:36:

In Reply to: SINCE BEFORE THEY KNEW posted by JANIE on November 15, 2001 at 18:53:53:

Sorry to hear about your current problems, but welcome to our CH site. Poke around at the buttons on the left, run a few searches of the archives and maybe you'll find something to help.

You said a few things in your post that aren't typical of clusters, such as the floor and walls moving, the pressure in your head, the pain in your arm and the tightening of your muscles. Fifteen years between cycles would be pretty unusual also. (BTW, I was first diagnosed accurately 19 years ago - some docs knew CH then just as some still don't know of it)

Soma is basically a muscle relaxant - - if it worked for your first cycle, that one at least likely wasn't clusters. If you do suffer from CH, it's not surprising that soma isn't helping this time around.

Do some research, communicate from a knowledgeable base with your docs and hopefully you'll find some help. Here's a link about soma to get you started.


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