Posted by Margi on November 16, 2001 at 12:56:55:
In Reply to: new to site...need some advice posted by Calley on November 16, 2001 at 01:24:40:
Sorry to welcome you here, but you've landed on the best possible resource for learning about clusters you can find!
Read everything you can lay your eyes on and start working NOW to get your hubby into a knowledge neuro. Check out the OUCH pages (button to the left) - there is a page there that lists knowledge CH Neuros by state and also around the world.
Has he tried oxygen? My hubby is a sufferer too and oxygen has really been a godsend for him. He reached the end of his rope with doctors years ago, so he doesn't have a prescription for it, but uses welders oxygen instead. It does the trick too.
He is currently in his 28th month of remission because of the mushroom therapy - definitely worth checking out. It has helped a lot of folks here.
And, check out our Family Services Group too - we're set up to help supporters cope. It's also in the OUCH button, then check out the pull down menus - we're there. Lots of great information that has been put together by folks right here in this family!!
Hang in there, lady - you're not alone anymore. And feel free to write me directly (just press my name in blue at the top of this post) if you need to yell, scream, cry or just lean. That's what we're here for!!
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