Posted by Claire on November 20, 2001 at 22:47:02:
I came across this website a while ago while trying to find out what was wrong with my boyfriend and just wanted to say thankyou!!!! I don't suffer from this horrible condition myself but I watch my boyfriend, Domenic, try to cope with the pain on a daily basis.
We live in Perth, Western Australia, and it seems that Cluster Headaches are not very well known here. In fact I did not know about them until recently, when in desperation I decided to take the diagnosis into my own hands - Domenic's symptoms match those described here exactly and it makes me so mad that the doctors that he has been seeing had not mentioned this condition earlier. I have since tried to find out as much about Cluster Headaches as I can, but the best information I have got so far is from you guys.
I have passed on heaps of information that I've found here and we have tried all the things that are suggested to ease the pain. We have also discovered that he also suffers from Mitral Valve Prolapse Syndrome (MVPS) so we also have to try to combat that as well. It looks like it's going to be a rough ride but hopefully we shall be in for some plain sailing eventually.
Again, thanks so much for this website it has really helped me to help Domenic.
I truely hope that a cure or at least a decent pain reliever is discovered soon so you can all lead a happy and pain free life - you deserve it!
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