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Posted by Sean ( on December 12, 2001 at 20:08:08:

Dear fellow CH sufferers,

I am an M.D./Ph.D student at Baylor College of Medicine, and I have been suffering episodic CH's for approximately 12 years now.

I am writing because recently I have had some success (knock on wood!) in preventing my own cluster bouts with a particular agent, and there is some interesting scientific literature that might provide a conceptual framework for how this might work.

I would like to try to organize a small pilot study to see whether others with episodic (and perhaps chronic?)might respond similarly.

If anybody is interested, please let me hear from you. If the response is great enough, I might be able to get the drug company to supply the drug for free.

Sean McGuire

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