Posted by Sean (128.249.135.100) on December 12, 2001 at 20:08:08:
Dear fellow CH sufferers,
I am an M.D./Ph.D student at Baylor College of Medicine, and I have been suffering episodic CH's for approximately 12 years now.
I am writing because recently I have had some success (knock on wood!) in preventing my own cluster bouts with a particular agent, and there is some interesting scientific literature that might provide a conceptual framework for how this might work.
I would like to try to organize a small pilot study to see whether others with episodic (and perhaps chronic?)might respond similarly.
If anybody is interested, please let me hear from you. If the response is great enough, I might be able to get the drug company to supply the drug for free.
Sincerely,
Sean McGuire