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Posted by ADame ( on December 18, 2001 at 13:37:01:

In Reply to: While I am sitting in this little corner of my world.... posted by nancyc on December 18, 2001 at 13:05:14:

I stopped posting for a long time because of all the fussing and bad language.

I come here for help as many do. We are a strange group of people from all walks of life that are basically in the same boat. We are trying to find some relief to this age-old war with the demon.

I have found out more valuable information from this board than all the years I have suffered on my own. Thanks D.J. for the Message Board and Web Site, but some seem to be here just because they don't have anything better to do.

Let's try and help each other deal with Clusters and all the things that go with them. That includes depression. We need sympathy a lot of the time from people that truly understand the pain we must endure or not endure (if we decide to end it all someday because we can't take the pain any more). I have been there. I know how low you can get. If I had the type of headaches I suffer from on a daily basis, I would end it all. I really don't think I could go on and each time I have one, I feel that way all over again.

My point is, please help each other deal with this terrible thing we all share in and be less critical of each other. Sometimes this board and way to vent is the only alternative we have.

Just my point of view, but this board has saved my life several times and I thank God it is available to me and I wouldn't want it to be destroyed because people just can't seem to get along.

End of lecture. Thanks to all of you that have E-mailed me suggestions and continue to do so.

My sole contribution to this board is a good suggestion. I carry with me on a prescription from my Neuro details of orders to be carried out if I presented myself to any Emergency Room in the country. I don't leave home without it. I travel a lot, playing golf, working, etc. My Neuro thought this was a wonderful idea. That way, since I am nocturnal and usually find myself in bad trouble in the middle of the night, he doesn't have to be awaken at 4 in the morning by an ER somewhere. They have his name, orders, phone number, etc. right in front of them. They don't doubt you when you are carrying a prescription from your Neuro. They are quick to carry out his orders and it also says, that after these orders I don't get relief, to call him. Try asking your docs for a prescription like this. It at least gives us a crutch to lean on when we must present ourselves to an ER somewhere and they think we are crazy or something worse a drug addict.

Thanks for your ears and your suggestions that have helped me many, many times.

Just A Dame In Pain

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