Posted by Bruce Spiller (126.96.36.199) on January 28, 2002 at 03:16:28:
Thanks for your fantastic website. It has helped my family and myself tremendously. I have been cluster free for 4 months now. I have suffered for 23 years. I know they will return any day. I often wonder if this is a way that God is testing my faith. After my last bout I went back to life as usual. It was easy to forget what I had just gone through, until I stumbled on this site today. By visiting this website again, I am reminded of what lies ahead for me. Just one more reason to make the most of every pain free day. I know that at any time I can lose 2-3 months of what should be a productive life, to that wretched beast. I am so pleased to know that other sufferers carry on with their lives also. This knowledge gives me strength during my ch cycles. My last cycle was quite exhausting for my business partners as well as my wife and children. I praise all the friends and families of ch sufferers for their strength and understanding. Strength in the face of adversity is an admirable quality. Last cycle I slept while standing or sitting up only. It really helped, along with the Demerol and OxyCodone. Dr would not prescibe a simple Beta blocker:Ergostat, which worked in the past. Only painkillers. I have got to find a doctor that will treat the cause and not the symptoms. 8 years of college and they know more about my ailment of 23 years than I do. I have lost a lot of respect for their profession. I can't donate blood or get life insurance now, as the doctors have stated that I have a neurological disorder. The lack of understanding by doctors is so frustrating.
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