Posted by Elaine (18.104.22.168) on February 02, 2002 at 18:30:04:
In Reply to: Lady E this is for you. Aloha to the rest of you... posted by Tony G on February 02, 2002 at 16:41:04:
I hate to hear that you feel this way. Hope you someday change your mind.
We don't have clicks here, I think what we have on ch.com is many circles of friends. Whats so good about it is we can mix and mingle with any circle here we want too.
Tony maybe whats ignorant to you is a post that is very important to someone else.
Maybe someone is so down, their friends are trying to cheer them up with a silly post.
A prayer post isn't for everyone but it is a up lift for some.
A fuss tell me someone who has clusters that doesn't get angery.
Sharing stuff in each others life is what friends are all about good or bad.
We either have clusters here or are a supporter of a clusterhead. We share much more than our pain here.
There is someone posting using everyones name people like him don't belong here but nothing that can be done about it.
This board even with nothing but cluster talk will not cure our clusters or find the cause. Working together as one and making our voice heard to non clusterheads is what will make a difference.
But OUCH will get the word out that we are tired of the pain and the crap that goes on when we try to get the insurance company to pay for our meds. When we can't take the pain any more and have to go to ER maybe the Doctors will be more educated.
We sure are not going to get this help from posting here. We will get it from people who join and work hard to come up with ideas and join some of the committees and get things going.
There are lots of people working hard to get the word out. There are lots of things going on on the OUCH site.
You do not have to be a member to post here!
My personal feelings about joining OUCH is if you want to make a change in clusters then join. I believe in OUCH and stand behind it.
Do whats right for you Tony.
My email is
any of those address are good ones.
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