Posted by S Kellam (204.116.134.58) on February 04, 2002 at 06:36:36:
In Reply to: Hey Steve, may I call you Steve? posted by BobG on February 04, 2002 at 04:54:29:
Hello,
No, I do not suffer from CH. I do suffer from Migraines and I do know S. Griffin and have seen him suffer greatly from CH. Since he began treatment, he has done great. Is he cured? We hope, but can only say he has had relief. After seeing him suffer so very much, relief is wonderful. He had talked many times about coming back to this site and hopefully helping others with the things he had learned. He did want to wait until he had experience relief for some time, before getting anyones hopes up.
I would think, after watching him suffer for so long with these CHs, that you sufferers would appreciate the fact that someone had tried and found relief and was willing to share this information with you. Yes, he paid to learn what he did, but no he was not offering to sell this information, but to pass it on freely. Why???? So others could feel the relief he has.
For the couple who are interested we will get this information to you. It has to be compiled on disc to send to you, but we will gladly do this.
Now, for the others, who would so rude, obnoxious, and vulgar, just want you to know that that is no way to respond to someone trying to help. If you diasgree, that is fine. But to attack someone in the way that you did is definitely uncalled for. There were several times we were on the message board and heard something, checked it out, and if we felt it would not work or the meds were dangerous, did not try it, but never verbally attacked anyone trying to help.
When we celebrated our holidays and looked back over the year, with all of the great things we had done and that had happened to us, the greatest milestone of the year was the fact that he was CH free. I am sure most of you have people who care tremendously about you and have watched you suffer. I have done that, feeling helpless. It has been great for us and I hope that it continues. He just wanted to share this fact with you. After all, one year free is a start and better than not having any time free.
We do hope you all find what you are looking for, but when others try to help, please answer with I will try or I don't think that will work, rather than viscous attacks. It is so unnecessary to do that to someone who is just trying to help you obtain the relief he has found.