Posted by judyw (216.221.107.120) on February 08, 2002 at 00:46:10:
In Reply to: Occular Migaines and Cluster Headaches posted by Mike on February 07, 2002 at 21:31:13:
life with CH...is that no matter what name you give it...it hurts...Lately, in thinking over episodes of the past, I have remembered the cycle that I was dx with occular neuralgia, then, came the cycle labeled, chronic ear infection, causing severe dizziness, and, let us not forget the cycle that produced severe jaw pain, but geeze, no inflamation of the TMJ...but, that was the dx...and, let us not forget the Bell's Palsy episode...But, the best one was when I, could not hold my head up on the neck, blurred tearing eye, runny nose, the dx was "I just didn't want to go to work"...By now, I have figured out that I must not have migraines, none of the meds work, but have been told women can't get "mens" HA CH...Mike, really all I am trying to tell you is that most of the doctors don't know anymore than we do, and we have to research for ourselves how we feel...and then, find a doctor who is willing to work with us...irregardless of what name is used...we are CHer's...one and all...united and supportive in our quest for relief and understanding...