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   Author  Topic: Alternative Therapy Round Two ( Updated)  (Read 1744 times)
Mark C
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Alternative Therapy Round Two ( Updated)
« on: Jun 2nd, 2007, 3:38pm »
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After years pain free the beast returned about 5 weeks ago.....pissed.
 
Round one of my treatment can be found here.  
Please read this.
 
I repeated the original treatmant but slightly increased the initial dose.
The first senasation I had was the nerve affected by my CH felt "aggravated", if that make sense, kinda odd.
 
Next day..........shadows.........hmmm...... Grin
 
Today...............nothing, no headache no shadows.....nada.
 
The beast made an apperance this afternoon. A nice K-8 out of nowhere. It did not last too long.  
I hope it is a farewell.

 
It is truly a miracle.
 
I want need to know why I respond so well to this treatment.
 
Has anyone else been able to measure PF time in years?
 
I reread my original post and cried......I am truly grateful to those who know who you are!.. Wink   Grin
 
All I can say is thank you!!
 
Mark
 
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« Last Edit: Sep 17th, 2007, 2:52pm by Mark C » IP Logged


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Re: Alternative Therapy Round Two
« Reply #1 on: Jun 3rd, 2007, 12:27am »
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on Jun 2nd, 2007, 3:38pm, Mark C wrote:
I want need to know why I respond so well to this treatment.

 
 

 
Don't look Mark!!!  Grin
 
Hope all goes well,
Bobw
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Re: Alternative Therapy Round Two
« Reply #2 on: Jun 3rd, 2007, 12:59am »
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on Jun 2nd, 2007, 3:38pm, Mark C wrote:
I reread my original post and cried...

 
I just went back also and noticed that the first person to respond, is no longer with us.  Cry
 
I do know that seeing other people become pain-free made him happy.
 
Bobw
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Re: Alternative Therapy Round Two
« Reply #3 on: Jun 4th, 2007, 7:41pm »
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I tried the treatment three years ago and have been relatively pf since.  I've only had two or three cycles in that time and they were very mild and didn't last longer than a week.  I couldn't give this treatment a stronger recomendation.  It gave me my life back.
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Did my brains fall out or is this headache over?
Mark C
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Re: Alternative Therapy Round Two
« Reply #4 on: Sep 5th, 2007, 5:45pm »
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They are back....more to be revealed
 
 Angry
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Re: Alternative Therapy Round Two
« Reply #5 on: Sep 6th, 2007, 2:37am »
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I'm in the same boat right now.  I really appreciated reading your original post.  I just dosed yesterday to break a cycle I thought had already been broken.  I got hit this afternoon by the nastiest CH I've ever had.  It started at 1230pm and lasted until 133pm.  The MFer took a 10 min break, then came back for another hour and a half.  Sick to my stomach, crying, and considering the ER for the first time in a long time.  Persistant shadowing over the next few hours, then nothing.  Currently not on any meds, but seeing a new Neuro next week.  Going to push for the o2, but hoping I won't need it until next year.
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Re: Alternative Therapy Round Two
« Reply #6 on: Sep 6th, 2007, 3:58am »
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on Jun 4th, 2007, 7:41pm, IndianaJohn wrote:
I tried the treatment three years ago and have been relatively pf since.  I've only had two or three cycles in that time and they were very mild and didn't last longer than a week.  I couldn't give this treatment a stronger recomendation.  It gave me my life back.

 
It is funny that some of the CHmember that I met here 3-4 years ago are no longer "that much present"!  hooray PF!  And there is no more canadian board too...  Hope there is  a good bunch of PF free poeple out there and all around the world!!!
 
Stand up for PFDAN
 
blue
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Re: Alternative Therapy Round Two
« Reply #7 on: Sep 7th, 2007, 3:36am »
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Exactly what is your "alternative therapy?"  Nevermind, I just read your old post. When all my "stuff" (verapamil, zomig clonodine, caffeine, prednisone, stops working -I have been a chronic for 11 yrs. now and have tried almost everything else  - I may ask what exactly "shrooms" are. For now, hope you are all having successes.  PF times. Madaline  Kiss
« Last Edit: Sep 7th, 2007, 3:53am by madaline » IP Logged
Mark C
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Re: Alternative Therapy Round Two Point One
« Reply #8 on: Sep 17th, 2007, 2:51pm »
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In an effort to squash the current cycle  LSA will be dosed this weekend.  
(Time permitting, attempting detox currently).
 
I am anxious to kill this bastard....again....  bigguns
 
Results to follow.  
 
Thank you all,
Mark
« Last Edit: Sep 17th, 2007, 2:55pm by Mark C » IP Logged


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Ray
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Re: Alternative Therapy Round Two ( Updated)
« Reply #9 on: Sep 17th, 2007, 3:30pm »
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Mark:
 
My prayers are with you to crush the beast under your heel.
 
Ray
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Re: Alternative Therapy Round Two ( Updated)
« Reply #10 on: Sep 18th, 2007, 11:32am »
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Just read through your original post.  Hope you have the same results, folks liek yourself have convinced me to start growing.  God bless and hears to PF days for all of us.
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Re: Alternative Therapy Round Two ( Updated)
« Reply #11 on: Sep 18th, 2007, 3:46pm »
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Hi Mark,
 
Glad to hear you've had success with this style of treatment.  It actually provides me with a heads up of what to expect when I embark on my own therapy.  Hopefully, I'm about 3-4 weeks off in terms of availability.  I hope to have the success you, and many others, have experienced.  I am currently off all preventatives (about 7 weeks now), it's tough letting go of that Trex though!  I'm thinking 2-3 weeks off that before my first session should be good. I am eager to start kicking some Beast ass!!!  Best of luck and continued success to you.
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Re: Alternative Therapy Round Two ( Updated)
« Reply #12 on: Sep 18th, 2007, 4:13pm »
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on Jun 2nd, 2007, 3:38pm, Mark C wrote:

Has anyone else been able to measure PF time in years?
 
Mark
 

 
I can!  
After doing the dance every other year for about 18 years I have not had a full blown cluster since Feb '03. I have dosed every 6 months either with the fungus or RC seeds and still nothing. There have been a few times when it felt like a hit was ramping up on a nightly basis but it has never broke through.
I will always be grateful for what you and the Clusterbusters have done Bob.
 
Jim
 
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Re: Alternative Therapy Round Two ( Updated)
« Reply #13 on: Sep 19th, 2007, 5:30am »
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Finger's crossed for you,
 
Always like a happy ending, doubt I'd have got such a good result without alternatives.
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