Posted by shelly (63.232.50.28) on July 20, 2001 at 19:25:58:
My little tough guy is doing so good. Sorry, to those of you who were hoping for a video tape, but my 3 year old cluster sufferer is now not performing. Only a few minor clusters, and an a eye stab every once in a while. I hope that someone gets themselves, or their child on tape. I have many clients a day, and I make sure and tell as many of them as possible what my son is going through. I make sure they understand that it's not a headache, it's an attack that happens to be in his head. I tell them it comes out of nowhere, and ends the same. I talk about this website, the people suffering, and supporting. Sometimes, if they let me I tell them more. In the end, I know that they truely won't understand, until they see... maybe not even then. I know that at least once, my blabbing has helped... After speaking to a client about clusters, my client called back two days later to tell me that she went back to work the next day, and one of her coworkers had an attcack. She later learned that he was going to be gone for a while because his cycles usually last up to two months. Of course, people in her office weren't sure what to believe, until she anounced her knowledge of his condition and the pain he must be going through. The thought that I helped that man get some tiny bit of understanding, made my year. Hopefully, it won't be my son that's the star of the video that shocks the world into listening, but if that's what it takes...