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Leggs
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help migraines/cluster headaches/estrogen
« on: Aug 8th, 2002, 1:18pm »
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I am 39yo woman, I was told years ago after a car accident, I have post trauma migraines and cluster headaches. I went to have them checked after i was driving to the emergency room and thought my headache would go away if I just ran into the bridge abuttment. When I got there, they tested me for narcotics, even though I had a droopy eyelid, one messed up pupil, and a hot poker in my head.  I sat in a rolling chair screamng and wanting to ram against the wall.
 
I was also told never to have estrogen.  What part of NEVER don't doctors understand?  I came home from my honeymoon after a "low dose" pill, with puking migraines, ended up with cluster headaches for months.  I was treated years later for endometriosis with low dose estrogen, had puking migraines in a week, cluster headaches for month.
 
What is the deal with migraines AND cluster headaches? Can one bring on the other, can they happen at the same time?  
 
Currently, I am dealing with a doctor trying to normalize me after a hysterectomy.  I have not had cluster headaches in YEARS, and now the demon has reared it's ugly head.  I KNOW it's the estrogen, and they are wanting me to have my blood pressure checked (fine) and my eyes checked (doing that tomorrow).  I understand how they want to get the most info they can, but I WANT them to know I was told to NEVER have estrogen!
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Re: help migraines/cluster headaches/estrogen
« Reply #1 on: Aug 8th, 2002, 8:05pm »
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Hi sorry the CH has returned... but welcome anyway... I hear you about the Migraines and hormones, but I didnt know that they could trigger or effect CH.   It totally sucks being a woman sometimes... most of the time, weekly, daily, every minute... Dump the Gynecologist and get a good Neuro...   You can  both Migraine and Cluster Headaches at the same time there are a few sufferers here that get them both... good luck and dont be afraid to ask questions.  Take care Ree
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Re: help migraines/cluster headaches/estrogen
« Reply #2 on: Aug 8th, 2002, 8:12pm »
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Hey Ree;
 
I agree it totally sucks being a woman sometimes.....but I will take it over the alternative any day!
 
 Grin ;D ;D
 
PFDAN.  K
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Re: help migraines/cluster headaches/estrogen
« Reply #3 on: Aug 8th, 2002, 9:02pm »
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Thanks for your comments Ree, one thing particularly interesting to me was how you said YES you can suffer from migraine and cluster headaches at the same time.
 
All day, I was obsessing, "so is the the migraine part or the cluster headache, this is totally my cluster headache, this is not a cluster headache."  Like right now, I am NOT having the hot poker, obsessing about rubbing my face, wanting to scream, eye burning thing going on. No, now I am nauseated and feel like the inside of my skullhas been carved out. It's like there's a dead spot in there where I was having the bad cluster headache, but it's not the same.  
 
I would like to hear more about the "anatomy" of having both headaches.  
 
Also, it's not so much my doctor, he's a prince, it's getting through tohim.  He has this particular nurse who says "he would have to have you blah blah before he would blah blah," sort of talking to him.  I just need to figure out the right thing to say to her to prompt him to call me. HE's not going to take care of my headaches, I am hoping this is just temporary--please LORD!  It's been going on since the 19th!  HE has actually acknowledged I may not be able to take estrogen given my history, it was actually MY request I try the patch, since the shot did not bother me, the pill OBVIOUSLY did.  The nurse, on the other hand, says maybe i needed a higher dose, that's why I am having headaches, or maybe my blood pressure is high.  
 
You know, it's just been so long since I had the bloody things, I forgot how consuming they are, I forgot I UNDERSTAND WHAT IS MESSING UP MY BODY!  When the pill caused the start up of the headaches, I should have said THEN, let's see what happens if I take nothing.  Live and learn.
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