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Topic: new to the site (Read 518 times) |
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bazman1
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what a life
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new to the site
« on: Jan 12th, 2003, 10:38am » |
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hi all im new to this site i am a episodic clusterer sufferer i have 2 bouts a year which normally last for about three months at a time i have had them for the past 12 yrs and have had them called headaches until 2001 when i was seen by a local doctor in the hospital who put me to see a neurologist who then diagnosed me with cluster head aches i have since then tried many different medications like zomig,propranolol,tegretol,(co-codamol,co-proxamol)carbamazipane,nethyse rgide,etc,etc i am now on o2 and imigran subject(injections) to which i get enormous relief out of thanks
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| « Last Edit: Jan 12th, 2003, 7:34pm by bazman1 » |
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bazman1
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Silver_Dolphins
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Do you nervously await the blows of cruel fate?
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Re: new to the site
« Reply #1 on: Jan 12th, 2003, 10:57am » |
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Hi Bazman,
Tell us a bit about yourself. DO you, or someone you know and love suffer from CH?
Look around the site get all the information available, and if you have questions, then by all means ASK. There are many folks on this site that have such a vast knowledge (unfortuantely from experience) of CH, and they are more than happy to help.
Welcome, and I hope you are pain free.
Silver Dolphins.
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Through the corridors of sleep, past the shadows dark and deep, my mind dances and leaps in confusion. I don't know what is real, I can't touch what I feel, and I hide behind the shield of my illusion
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Jarvis
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Re: new to the site
« Reply #2 on: Jan 12th, 2003, 11:01am » |
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Read and Type. Ask and Tell.. Do as silver D. says and enjoy the therapy and knowledge
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bazman1
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what a life
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Re: new to the site
« Reply #3 on: Jan 12th, 2003, 11:21am » |
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thanks for making me feel at home on this site.i am a cluster sufferer and have been one for the past twelve years i was finally diagnosed with ch in 2001 whilst in my local emergency room since then i have tried many drugs (which were supposed to be miracle cures)which have failed until recently a neurologist decided to try me on o2 and imigran subject which have seemed to work so far the only problem with it is that my local doctors know nothing about ch and seem to think that it is a very expensive drug for (just a ch)so i have to fight with them every 6 months to get more
also its nice to know that im not going insane and that there is people like myself out there.thanks again
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bazman1
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BobG
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Re: new to the site
« Reply #4 on: Jan 12th, 2003, 11:50am » |
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Good to hear that you have the O2 and the imigran. Those are the abortivies of choice for most ch sufferers. See if your doc will prescribe a preventative like Verapamil.
And if the doc ever uses the phrase "just a ch", hit him in the head with a snow shovel and say "What's the problem doc? It's only a headache."
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| « Last Edit: Jan 12th, 2003, 11:52am by BobG » |
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Stay stressed. Never relax. Never sleep. Ever.
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Jarvis
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Re: new to the site
« Reply #5 on: Jan 12th, 2003, 11:57am » |
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Hey Bazman- seems many docs dont have a clue about CH but just as many do.There is a doc list in the buttons to the right of some docs that know if you havent allready checked.. Glad you were finally diagnosed. Lots of info and experience here on this site for you. If you found something that works it is priceless. Once diagnosed a lot of experimenting with different meds goes on for many.... Are you chronic or episodic?
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bazman1
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Re: new to the site
« Reply #6 on: Jan 12th, 2003, 11:57am » |
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thanks for the last reply i have already threatened to shove a chair up a doctors rear passage as he thought i was on drugs when i came in with a ch because he couldnt believe a headache could do this to someone and he also got me a police escort away from him
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bazman1
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bazman1
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Re: new to the site
« Reply #7 on: Jan 12th, 2003, 12:00pm » |
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reply to no.5 i am an epesodic sufferer i get the twice a year for about three months at a time
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bazman1
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Karla
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Re: new to the site
« Reply #8 on: Jan 12th, 2003, 1:22pm » |
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Personally I would be looking for a new dr if I was told it was only a headache or only ch. I can't believe the dr had the police escort you out. How uncompationate and stupid. He is ignorant about it. I would be out of there and not going back.
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Karla
suffer chronic ch
ch.com groupie since 1999
Proud Mom of Chris USMC Semper Fi
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Roxy
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Re: new to the site
« Reply #9 on: Jan 12th, 2003, 1:24pm » |
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Hi Bazman and welcome to the world of Clusterheads,
While your doctor is having his asschair surgically removed, do as Jarvis said and click to the left and find a doc who will at least not have you escorted away. Sounds like you've got a good start on the 02 and Imitrex...just so sorry it was 12 years late.
Go join OUCH, it's a lifesaver, both mentally and physically, and read, read, read. Then print out everything you can......take it to your local dr.
Good luck and here's wishing you many PFDAN,
Roxy
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Only two things are infinite, the universe and human stupidity, and I'm not sure about the former. (Einstein)
I used to have a handle on life....but it broke.
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cootie
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Re: new to the site
« Reply #10 on: Jan 12th, 2003, 2:18pm » |
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Bazman..hello....sounds like your goin thru alot of the similar ordeals.....you'll learn alot on here and OUCH site....we have ta fight with our insurence co 'every' month durein Brad's cycle.....not had ta threaten ta ram a chair anywhere....it's always a thought when ya get the run 'round tho isn't it (that's a tame one actually)....good luck to ya.......Pam
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Cause and Effect......"Cause is the effect concealed, Effect is the cause revealed"
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Mark C
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Onward through the fog.
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Re: new to the site
« Reply #11 on: Jan 12th, 2003, 2:52pm » |
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Welcome to the Nuthouse bazman1,
We love new folks. Sorry you need us but we are glad you are here. If you have threatened a stupid doctor you are going be right at home here. Not that we all beat our Doctors, it just that is something we all can relate to. Good luck with the head.
on Jan 12th, 2003, 11:50am, BobG wrote:
And if the doc ever uses the phrase "just a ch", hit him in the head with a snow shovel and say "What's the problem doc? It's only a headache." |
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What Bob said....
on Jan 12th, 2003, 1:24pm, Roxy wrote:
While your doctor is having his asschair surgically removed,
Roxy |
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Asschair.....Roxy I like you 
Lets see, a shovel on one end and a chair up the other, sounds like this Doc needs a Doc! LMAO!
PFDAN's,
Mark
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cootie
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Re: new to the site
« Reply #12 on: Jan 12th, 2003, 3:23pm » |
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Don't fergit the 'bad bad' docs colonoscopy.....when the chair is removed a firehose sized tube will be easy access.......the shovel will take care of any sedatives needed......we could start sellin VHS tapes.....and call it...."When CH'rs go wild".......Pam 
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Cause and Effect......"Cause is the effect concealed, Effect is the cause revealed"
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jonny
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Stay away from Cootie, she has cooties.
Plus I think she is some kind of Mistress of the dark.
You have been warned.
....................................jonny
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bazman1
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what a life
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Re: new to the site
« Reply #14 on: Jan 12th, 2003, 6:16pm » |
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does anyone know where i can get information about all the different medications available? for clusterheads.
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bazman1
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cootie
New Board Hall of Famer
sumday I'm gonna be sumbody........ ..
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Re: new to the site
« Reply #15 on: Jan 12th, 2003, 6:43pm » |
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johnny....nooooo sir......I jus have too much visual...creative minds can be a good thang.......makes fer good conversation ta keep an interest......I dunno.....sumthin like that......ha-ha-ha-ha......Pam......the cootie without cooties......
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Cause and Effect......"Cause is the effect concealed, Effect is the cause revealed"
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