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   Author  Topic: Unofficial poll........(FU Don)  (Read 2086 times)
Tara Ann
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Re: Unofficial poll........(FU Don)
« Reply #25 on: Dec 21st, 2003, 6:42pm »
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Personally I couldn't afford it (yeah $25 seems like a small amt to pay to alot of you but to me it's alot of money that could go to diapers or towards bills!)  We have been tight on money for along time now and scrambling to climb outta the whole for along time now.  
 
If I had money the answer would be yes, but at this point in time my answer is no and that's why I try to contribute in other ways (such as writing an aritcle for Donna's newsletter)
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Re: Unofficial poll........(FU Don)
« Reply #26 on: Dec 21st, 2003, 6:48pm »
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No problem, I have well over $800 signing people up......im sure you will kick in when you can.
 
..................................jonny
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Re: Unofficial poll........(FU Don)
« Reply #27 on: Dec 21st, 2003, 6:59pm »
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Yes
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Re: Unofficial poll........(FU Don)
« Reply #28 on: Dec 21st, 2003, 7:01pm »
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on Dec 21st, 2003, 6:15pm, jonny wrote:
Did I mention to "Keep your chatter" to yourself?
 
Its Yes or no!!!!!
 
......................................jonny

 
 
you sounds like my 3rd grade teacher - "keep your chatter to yourself"....  
 
ggeeeesh!
 
tina
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Re: Unofficial poll........(FU Don)
« Reply #29 on: Dec 21st, 2003, 7:02pm »
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This discussion went on and on over on the OUCH board with little membership input.
 
I will start a poll thread over there again and let the membership sing out !
 
Here it is;
 
http://www.clusterheadaches.org/members/cgi-bin/yabb/YaBB.cgi?board=news
« Last Edit: Dec 21st, 2003, 7:06pm by don » IP Logged
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Re: Unofficial poll........(FU Don)
« Reply #30 on: Dec 21st, 2003, 7:36pm »
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Yes
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Re: Unofficial poll........(FU Don)
« Reply #31 on: Dec 21st, 2003, 7:45pm »
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Please posts reponses on the OUCH board. Membership is automatically verifed that way.
« Last Edit: Dec 21st, 2003, 7:46pm by don » IP Logged
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Re: Unofficial poll........(FU Don)
« Reply #32 on: Dec 21st, 2003, 7:59pm »
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Yes.
 
Steve G
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Re: Unofficial poll........(FU Don)
« Reply #33 on: Dec 21st, 2003, 10:32pm »
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yes!
But would that be canadian or american?
 
Or was I allowed to ask?
 
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Re: Unofficial poll........(FU Don)
« Reply #34 on: Dec 21st, 2003, 10:37pm »
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Yes.      
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Re: Unofficial poll........(FU Don)
« Reply #35 on: Dec 21st, 2003, 10:38pm »
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Cool
 
Yes
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Re: Unofficial poll........(FU Don)
« Reply #36 on: Dec 21st, 2003, 10:46pm »
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 ...........Yes......
....Mark..
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Re: Unofficial poll........(FU Don)
« Reply #37 on: Dec 22nd, 2003, 1:57am »
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why take a poll?
If you take out the 32 that jonny keeps reminding everyone that he paid for, from the number of members you had back then, you'd have a pretty good idea of the numbers of people willing to pay up.
If you're going to poll, maybe you should also be asking how many people are also willing to pay someone else's way, and add the expected "hardship" memberships to the paid members.
 
Just my 2 cent donation to the thread... Grin
 
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Re: Unofficial poll........(FU Don)
« Reply #38 on: Dec 22nd, 2003, 2:01am »
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Yes
 
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Re: Unofficial poll........(FU Don)
« Reply #39 on: Dec 22nd, 2003, 5:03am »
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YES!!!  Wink
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Re: Unofficial poll........(FU Don)
« Reply #40 on: Dec 22nd, 2003, 6:44am »
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Quote:
If you take out the 32 that jonny keeps reminding everyone that he paid for, from the number of members you had back then, you'd have a pretty good idea of the numbers of people willing to pay up.

 
Want an easier way? Count the number of people who actively took part in the elections.
 
Here some questions to ponder.  
 
What benefits do paying members recieve as opposed to a non paying member that visits the OUCH web site regularly?
 
Do we anticipate grant money in order to finance the work of OUCH ?
 
Do non paying members have access to the OUCH MB ?
 
Can non paying members attend the convention?
 
Are we more concerned with raising money than we are with raising membership?
 
It is not as easy as flipping a coin. Maybe Bob or DJ can dig up the membership numbers just prior to becoming a free organization and post them over on the OUCH site. What we decide here could have major, and I mean major, implications as to how seriously we are taken by the research and medical community.
 
 
Boasting a membership of 84 does not impress insurance companies or anyone with a potential to finance OUCH. Weather or not our 1000 (+) membership is active is irrelevant. What the numbers say to the medical community is there is a need. What the numbers say to pharmacuetical companies is there is money out there in providing for CH. What the numbers say to the insurers is that we are unified and demand to be heard.
 
Im my opinion, the amount of dues that will be collected is not worth jeapordizing all of the above.
 
The "Fundraising Team" has been doing an incredible job in raising enough money to sustain OUCH. Do we need to reach into the pockets of the membership? The future of OUCH will depend largely on funding from grants in order to fullfill our mission of education and awareness (i.e education sessions)
 
OUCH is about education and raising awareness for sufferers and their loved ones. We are losing focus.  
 
Quote:
Our mission is:
 
The Organization for Understanding Cluster Headaches (O.U.C.H.) provides information and emotional support to cluster headache sufferers throughout the world.
 
We encourage, support and participate in research to develop new and improved therapies and practices for treating cluster headaches.
« Last Edit: Dec 22nd, 2003, 7:47am by don » IP Logged
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Re: Unofficial poll........(FU Don)
« Reply #41 on: Dec 22nd, 2003, 8:13am »
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Count me in for 25 bones, no problem, I can waste that much in an hour in the bar on Friday night. laugh
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Re: Unofficial poll........(FU Don)
« Reply #42 on: Dec 22nd, 2003, 8:25am »
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yes eposodic hubby here would join...!
 
and if you think that go down on the fee even 10-15 bucks is bettah than no bucks........... ree
 
(who is much bettah this week)
« Last Edit: Dec 22nd, 2003, 8:26am by Ree » IP Logged

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Re: Unofficial poll........(FU Don)
« Reply #43 on: Dec 22nd, 2003, 9:05am »
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on Dec 22nd, 2003, 6:44am, don wrote:

 
Want an easier way? Count the number of people who actively took part in the elections.
 
Here some questions to ponder.  
 
What benefits do paying members recieve as opposed to a non paying member that visits the OUCH web site regularly?
 
Do we anticipate grant money in order to finance the work of OUCH ?
 
Do non paying members have access to the OUCH MB ?
 
Can non paying members attend the convention?
 
Are we more concerned with raising money than we are with raising membership?
 
It is not as easy as flipping a coin. Maybe Bob or DJ can dig up the membership numbers just prior to becoming a free organization and post them over on the OUCH site. What we decide here could have major, and I mean major, implications as to how seriously we are taken by the research and medical community.
 
 
Boasting a membership of 84 does not impress insurance companies or anyone with a potential to finance OUCH. Weather or not our 1000 (+) membership is active is irrelevant. What the numbers say to the medical community is there is a need. What the numbers say to pharmacuetical companies is there is money out there in providing for CH. What the numbers say to the insurers is that we are unified and demand to be heard.
 
Im my opinion, the amount of dues that will be collected is not worth jeapordizing all of the above.
 
The "Fundraising Team" has been doing an incredible job in raising enough money to sustain OUCH. Do we need to reach into the pockets of the membership? The future of OUCH will depend largely on funding from grants in order to fullfill our mission of education and awareness (i.e education sessions)
 
OUCH is about education and raising awareness for sufferers and their loved ones. We are losing focus.  
 

 
 
I find myself having to agree with Don on this one. We just need more ways to raise money. We need ways to get our Organization in with the "United Way". I dont know how many people voted last year, but i'd venture to say less than 100.  
Lets think of ways we can get money into our OUCH through donations, and not Membership.
 
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Re: Unofficial poll........(FU Don)
« Reply #44 on: Dec 22nd, 2003, 9:48am »
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Yes, no problem.  
 
I had just become a member of OUCH right before the elections and didn't feel that I had the right to put in a vote. I haven't been here very long, and felt that I didn't have the right to have a 'voice' yet.
 
Just my 2 cents.
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Jackie S.
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« Reply #45 on: Dec 22nd, 2003, 9:52am »
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I'll chatter any time I want ...Elvis!
 
That said.
 
Yer preachin to the choir!
 
.....somebody send Jonny a Funk and Waggnel's Metaphor book fer CHRISTmas so he knows what that means.
 
Love
den
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Re: Unofficial poll........(FU Don)
« Reply #46 on: Dec 22nd, 2003, 10:13am »
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In January 2002, after OUCH being in existance for 2 years, we had approxiamtely 150 paid members.  This was after going through $10 per member, $25 per member and $25 per member and supporter.
 
In the little over a year since OUCH membership became free, membership went from 150 to over 1300.
 
Persoanlly, I really don't care to part of an cluster organization that requires sufferers to pay to be part of it.
 
To all the yes answers above, there is a donation page at the OUCH site, what's stopping you?
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Re: Unofficial poll........(FU Don)
« Reply #47 on: Dec 22nd, 2003, 11:50am »
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on Dec 22nd, 2003, 10:13am, Bob P wrote:
To all the yes answers above, there is a donation page at the OUCH site, what's stopping you?

Great question.  I think I'll just have to put my money where my mouth is. Smiley
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Re: Unofficial poll........(FU Don)
« Reply #48 on: Dec 22nd, 2003, 12:15pm »
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I gotta agree with Don and Bob P. If past history is still relevant, this may take our membership numbers way down. An organization of 100-200 members does not appear near as powerful as one with 1,000-1,500 members. Arguing that; well, all 1,000 members should pay the $25 doesn't mean it will happen. Unless we really NEED the money that this would generate, and it would be quite a bit  ($5,000 or so) I would think real hard before I would add a membership fee. That said, I would pay the $25 to remain a member. How's that for both sides of the fence? nopity
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Re: Unofficial poll........(FU Don)
« Reply #49 on: Dec 22nd, 2003, 12:24pm »
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on Dec 22nd, 2003, 10:13am, Bob P wrote:

Persoanlly, I really don't care to part of an cluster organization that requires sufferers to pay to be part of it.

 
Command or demand, I'll balk every time.
Given freely, I'll keep on giving.
 
on Dec 22nd, 2003, 10:13am, Bob P wrote:
To all the yes answers above, there is a donation page at the OUCH site, what's stopping you?

Have a look-see. It really works:
http://www.clusterheadaches.org/donations.html
 
Try it. You'll like it,
RJ
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