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   Author  Topic: Unofficial poll........(FU Don)  (Read 1684 times)
AlienSpaceBabe
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Re: Unofficial poll........(FU Don)
« Reply #50 on: Dec 22nd, 2003, 12:48pm »
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on Dec 21st, 2003, 7:45pm, don wrote:
Please posts reponses on the OUCH board. Membership is automatically verifed that way.

 
 
Yes (and I'll say that on the ouch board too, when i can get there)
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Elaine
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Re: Unofficial poll........(FU Don)
« Reply #51 on: Dec 22nd, 2003, 1:28pm »
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Every year we only have 70 or so people who vote.
Where are these 1300 members Bob? They are people who search the web and find O.U.C.H. and they sign up so they can read the information. Most never return, and nine times out of 10 they more than likely don't have clusters. Is O.U.C.H a real org? There is no way we know if anyone truely has clusters or is a supporter. At least if they send in a membership dues of $5 we know they are intrested. Its not the money that matters, its REAL intrest and its real numbers we want, real members that care. You guys Clusters are rare and that means members would be low.
Just my opinion!
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Re: Unofficial poll........(FU Don)
« Reply #52 on: Dec 22nd, 2003, 1:37pm »
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like most things there are 2 sides represented here.  
 
1.  The need for legitimate marketing/funding
 
2.  Clarity in membership
 
these will always overlap.
 
I still think paid membership of a modest fee is beneficial.
 
How that crosses over to legitimate marketing and expansion of OUCH remains a challenge.
 
That said, I still feel that it is reasonable to ask the membership dues of $25.00 per year from members.  I really feel that if you suffer from cluster headaches, $25.00 is worth every single word you ever read here.
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
 
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don
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Re: Unofficial poll........(FU Don)
« Reply #53 on: Dec 22nd, 2003, 3:07pm »
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Quote:
$25.00 is worth every single word you ever read here.  

 
And it is but it should not be fee for service.
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hdbngr
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Re: Unofficial poll........(FU Don)
« Reply #54 on: Dec 22nd, 2003, 3:30pm »
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From a non-profit/fundraising standpoint, that which is free can be ascertained to have little or no value....even oraganizations that provide a service to low or no income families incorporate a $5 membership fee.
 
I'm probably going to get blasted for this, but hey, I  fundraise for a living....the casual visitor will be discouraged unless there was something tangible thrown in, like an OUCH key chain or bumpersticker imprinted with the web address for the fee. Or a membership/emergency ID card that could be of use at a visit (This has come up as a need before, promotion and identification at physician offices)  
 
Why not come up with a small token item that a paid member would receive? Money would be raised, OUCH advertising accomplished, and there is a constant reminder that the resource is there (even if the pain is making it hard to think).  
« Last Edit: Dec 22nd, 2003, 3:32pm by hdbngr » IP Logged

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don
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Re: Unofficial poll........(FU Don)
« Reply #55 on: Dec 22nd, 2003, 3:33pm »
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In the past paid members recieved a membership card if that counts.
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hdbngr
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Re: Unofficial poll........(FU Don)
« Reply #56 on: Dec 22nd, 2003, 4:34pm »
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It counts, but not still available?
 
There was a link from OUCH for use in ER's/physician's offices that basically detailed:I am a cluster sufferer, please treat me with respect. I am not a drug seeker, etc. THIS would be nice, although it would probably have to be tiny print.
 
Another good one was a post and a suggestion for a poster of the Hypocratic Oath a nice decorative/peaceful background. Send it to all of the Docs on the site first with an intro letter, they might post it in their office. Then hit every "headache specialist" by state, thereafter.
 
"I will prescribe regimen for the good of my patients according to my ability and my judgement and never do harm to anyone. To please no one will I prescribe a deadly drug nor give advice which may cause his death."
 
If this could make treatment options easier, now that would be a service.
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Carl_D
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Re: Unofficial poll........(FU Don)
« Reply #57 on: Dec 22nd, 2003, 4:36pm »
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YES! (And I am a poe boy.)
 
OUCH means that much to me.
 
Peace,
Carl D
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Re: Unofficial poll........(FU Don)
« Reply #58 on: Dec 22nd, 2003, 4:43pm »
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Count me in. This site is a must for me.
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Re: Unofficial poll........(FU Don)
« Reply #59 on: Dec 22nd, 2003, 5:36pm »
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I paid before, I'd do it again.
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don
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Re: Unofficial poll........(FU Don)
« Reply #60 on: Dec 22nd, 2003, 5:56pm »
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Quote:
Count me in. This site is a must for me.

 
A little reminder. We are not discussing ch.com here.
 
DJ already tried charging me a hunert bucks to post here. I just told him to fuck off and he left me alone.
 
The site in question is ch.ORG. The OUCH site.
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Jackie
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Re: Unofficial poll........(FU Don)
« Reply #61 on: Dec 22nd, 2003, 8:34pm »
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Yes...
I paid membership fees to belong to OUCH before and would gladly do so again.
 
This is a complex situation.  OUCH wanted numbers.  By dropping the membership dues they accomplished this.
My question is...how real are those numbers?  Does it matter to OUCH if those numbers are real or not.....I don't know.  
 
I've never belonged to ANY organization that required nothing from it's members.  It seems to me that part of belonging to any group is giving something....be it $5.00 or $25.00.  
 
There should be some requirement that would validate membership.  If a potential member could not afford a small membership fee then perhaps they could pay in 'soft money' (volunteer for a committee or project......something).
 
I have no idea what the answer is but I do know that OUCH's survival will ultimately depend on the members and their willingness to participate.  There are approximately 5,600 people registered here on ch.com.  How many are registered on OUCH......127  Sad
 
Jacks Cool
« Last Edit: Dec 22nd, 2003, 8:40pm by Jackie » IP Logged
don
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Re: Unofficial poll........(FU Don)
« Reply #62 on: Dec 22nd, 2003, 8:40pm »
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Quote:
My question is...how real are those numbers?  Does it matter to OUCH if those numbers are real or not.....I don't know.  

 
The answer to that question can be found in my post on the OUCH board.
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Re: Unofficial poll........(FU Don)
« Reply #63 on: Dec 22nd, 2003, 8:51pm »
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Thank you, Mr. President. Smiley
Apparently numbers are an important consideration...real or not.  That makes some sense to me but I still feel there should be SOME requirement.
What that requirement would be I have no idea.
Ya think we'll ever figure it out... Huh
 
Jacks Cool
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Re: Unofficial poll........(FU Don)
« Reply #64 on: Dec 22nd, 2003, 8:53pm »
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on Dec 22nd, 2003, 8:40pm, don wrote:

 
The answer to that question can be found in my post on the OUCH board.

 
 
so can mine: and here it is....
 
Quote:
i must be a dumbnuts... if the the pole/poll/pohl is: pay for your membership?....f**keneh
 
if it's $25:    f**ken-NO.... $10 is enough to weed the wannabe-a-member-of-something-for-free from the yes-i-am-but-strapped....  
 
i gave up smokin' fer a week to send in *MY* two-bits... and now that i'm working, i'll send in another...  
 
i also agree that, to be credible, to be given our *due* by the freakin pharmers, and the doctors who keep them in Bu$$ine$$, we have to have money, (guns), and numbers....  
 
but there is more than one way to wring a neck... and media exposure is the way that people (these days) sell nuts... i mean. ONE SHOT of/on OPRAH ... and holey nuts.... i have seen more teevee progams on ***RARE*** stuff than i have on Uncle Fester's terminal jock-itch.... and  UFTJI can be seen at 4:15am on cable....
 
...what was the question?

 
...and the OUCH censor is MUCH stricter than DJ's...
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Re: Unofficial poll........(FU Don)
« Reply #65 on: Dec 23rd, 2003, 10:04am »
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Yes
 
Sure non-members can and will still find support here
 
David
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Re: Unofficial poll........(FU Don)
« Reply #66 on: Dec 23rd, 2003, 10:16am »
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yes Grin
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Re: Unofficial poll........(FU Don)
« Reply #67 on: Dec 23rd, 2003, 12:37pm »
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HELL YEA!!!!!!!!!!! Paid before will be glad to pay again!  Grin  Hell I still have my membership card and so does Dave!! Like the Amercian Express card never leave home with out it!!
Leesa
 
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